It is quite a traumatizing experience to have a child that is suffering from a disease that is considered deadly. Cerebral palsy interferes with the child in terms of movement, balance and posture. It can also damage the brain completely interfering with cognition. The child affected needs support and an assurance that the society still needs them. They should not at any time feel unwanted and a burden to others. Coming up with cerebral palsy support groups for parents is therefore very important.
When in such groupings, parents get invaluable help in terms of emotional support from others in the same situation. They get to learn that they are not alone in this. Moreover, there are also training programs where they gain skills on how to handle the patient, for instance, massaging them. This brings a therapeutic and relaxing effect, thus lowering the chances for a seizure.
With determination, starting is not hard. If you are a parent with a child suffering from this condition, you are bound to meet others when you go to the hospital. What about sharing with them the need to come up with an organization? You never know, you might be surprised to realize this is what most of them actually needed.
Another way is to join a group that has already been formed. However, it would be better if it comprised of parents from the same neighborhood. This way, regular meetings will be possible to chart the way forward. There are many who suffer in silence and for fear of shame, they keep the children indoors with no medical attention at all. Others also lack the funds to meet the huge financial requirements of treating such a disease.
Every time you converge, share your fantasies, fears and other experiences. Plan how the challenges of each one in the union can be dealt with. One might be willing to help the child but money becomes a problem. With support from the association the child can definitely get treated, since it easier to seek funds from the society as a group than as an individual.
A number of methods should be explored when bidding for donations. Look for sources like churches and mosques that have assistance programs to affected members of the society. Approach the government representatives too as there are funds normally set aside for aid. Finally, organize for your own web page that will show the world who you are and what you do.
You can be lucky enough to have membership that cuts across all types of people. Professionals like doctors and human rights lawyers might end up being part of you. Another faction that might be attracted could be that of politicians and church leaders. With such vast membership you become limitless.
Once you have such a diverse membership, start organizing for events aimed at educating the society, making the society aware that people with cerebral palsy are equal humans and that they also have a bright future. Seek sponsorships for these wonderful kids so that they also get a share of the piece of cake that is the future.
When in such groupings, parents get invaluable help in terms of emotional support from others in the same situation. They get to learn that they are not alone in this. Moreover, there are also training programs where they gain skills on how to handle the patient, for instance, massaging them. This brings a therapeutic and relaxing effect, thus lowering the chances for a seizure.
With determination, starting is not hard. If you are a parent with a child suffering from this condition, you are bound to meet others when you go to the hospital. What about sharing with them the need to come up with an organization? You never know, you might be surprised to realize this is what most of them actually needed.
Another way is to join a group that has already been formed. However, it would be better if it comprised of parents from the same neighborhood. This way, regular meetings will be possible to chart the way forward. There are many who suffer in silence and for fear of shame, they keep the children indoors with no medical attention at all. Others also lack the funds to meet the huge financial requirements of treating such a disease.
Every time you converge, share your fantasies, fears and other experiences. Plan how the challenges of each one in the union can be dealt with. One might be willing to help the child but money becomes a problem. With support from the association the child can definitely get treated, since it easier to seek funds from the society as a group than as an individual.
A number of methods should be explored when bidding for donations. Look for sources like churches and mosques that have assistance programs to affected members of the society. Approach the government representatives too as there are funds normally set aside for aid. Finally, organize for your own web page that will show the world who you are and what you do.
You can be lucky enough to have membership that cuts across all types of people. Professionals like doctors and human rights lawyers might end up being part of you. Another faction that might be attracted could be that of politicians and church leaders. With such vast membership you become limitless.
Once you have such a diverse membership, start organizing for events aimed at educating the society, making the society aware that people with cerebral palsy are equal humans and that they also have a bright future. Seek sponsorships for these wonderful kids so that they also get a share of the piece of cake that is the future.
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